Former Little Mix singer Jesy Nelson says her twin babies may never walk after they were diagnosed with a rare and severe genetic disorder.

The singer, 34, shared an emotional video on Instagram Sunday revealing her infant twins, Ocean Jade and Story Monroe Nelson-Foster, have been diagnosed with spinal muscular atrophy type 1 (SMA1), which causes progressive muscle weakness and paralysis.

Why Former Little Mix singer Jesy Nelson says her twin babies may never walk

Former Little Mix singer Jesy Nelson says her twin babies may never walk due to the severity of their diagnosis.

 We were told that they’re probably never going to be able to walk; they probably will never regain their neck strength, so they will be disabled.

 Nelson explained in the video. The twins, born prematurely in May, began showing signs of limited leg movement and feeding difficulties.

Nelson credited her own mother for spotting the early symptoms, which doctors initially dismissed as typical preemie development.

The urgent awareness campaign behind the diagnosis

Nelson's decision to go public stems from a critical need for awareness. Former Little Mix singer Jesy Nelson says her twin babies may never walk, but she emphasizes that "time is of the essence" with SMA1.

She outlined key symptoms for parents: floppiness, an inability to hold up the head, a frog-like leg position, and rapid belly breathing.

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If anyone is watching this video and they think they see these signs... please take your child to the hospital," she urged.

 The UK currently does not include SMA in its standard newborn screening, a fact charities call "shockingly" overdue.

A fight against the odds with new treatments

Despite the prognosis, there is hope. Nelson confirmed her daughters have received one of the transformative new SMA treatments now available on the NHS, including gene therapies.

She expressed profound gratitude for this access, stating that without treatment, the condition is fatal.

I truly believe that my girls will fight all the odds, Nelson said, vowing to help them go on to do things that have never been done.

This diagnosis follows a high-risk pregnancy where Nelson also battled twin-to-twin transfusion syndrome (TTTS), requiring a 10-week hospital stay.

Source Information:

This report is based on Jesy Nelson's personal Instagram announcement and supporting information from the UK's National Health Service (NHS) and the charity SMA UK.
Read more: NHS Information on Spinal Muscular Atrophy